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| arachidonic, fat girls and feeders , bipolar disorder, big plump plumpers galleries com , omega3 fatty acids , st. john's wort, wiel, prostate, audience: doctors/health professionals, transfatty acids, macrobiotics, | These are real children and adults that are being further damaged every day. They are frequently told to audience: parents/carers wait for the drug or gene therapy that will be the answer to their health condition. It audience: parents/carers will be a very long wait, too long for most unfortunately. Often the media focuses on a family who is fighting for their child such as Michaela and Augusto Odone who tried to find a treatment for their child with adrenoleukodystrophy (ALD) with the use of Lorenzo's Oil. Lorenzo Odone The story of Lorenzo, who is now 17 audience: parents/carers years old, is sadly not a successful one. Medical trials have proven that the elevation of very long chain saturated fatty acids (C24:O lignoceric acid and C26:O hexacosanoic) are normalized with the administration of Lorenzo's Oil (C18:1 oleic acid and C22:1 erucic acid) but the degeneration of the condition persists and is relentless. |
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| While posing for pictures for the event Alex firmly held up his arms and said, "I am Awesome Alex -- The Adventurer!!!" As so many families agonize over treatment for intractable seizure disorders, developmental delay, disturbances in metabolism, audience: doctors/health professionals autism, traumatic brain injury and neurodegenerative conditions they often find twisted, frustrating pathways that lead to more questions than answers for their critically audience: doctors/health professionals ill loved ones. Often the label audience: doctors/health professionals genetic defect or inborn error in metabolism etiology unknown is solidly placed upon children and adults who fail to conform to a rigid set of parameters that define a particular disorder or disease. The true query is: What shall we do now to address metabolic disturbances in the myriad of "hopeless" conditions that exist today? |
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